Jun 13, 2016

The One with the 3 1/2 Year Old Who Is Done with the Neurologist

Since Addison went through her regression about two years ago, we have been going to a neurologist at Children's Mercy. He was the one that did the MRI and then has tracked her progress for the last couple of years.

When we first went to the neurologist, I expected he would recommend just physical therapy and want to keep an eye on her so I went to that appointment by myself. As it turns out that ended up being a couple hours and by the end of it we were scheduled for her MRI. My heart dropped and at several different points I sobbed. I worried about what they might find. Every possible thing thing raced through my mind. I was stressed and worried for the next few months leading up to the MRI.

Then she got the MRI and that was a horrible experience. I truly never want to sedate my children again. It was awful but we got through it. Her follow-up appointment was scheduled for a month and a half after the MRI. He was calmed and there wasn't any concern in his voice as he explained the spots he found in her occipital lobes. He also told us that they were so small that it was hard to tell if those are what caused the regression or not. But we had nothing to worry about. He said they were mostly likely caused from an injury or an illness. She had been sick a few weeks before I noticed the start of the regression and even though she wasn't too sick at the time, there could have been something more but kids can be pretty stoic and we may have had no idea what was really going on. He said that either they would just go away and no damage done or she could have issues with her peripheral vision. He suspected they would just go away no damage done. And even better she was progressing again.


We were going to head back a couple months later so he could check her out again. We headed back once again and he checked her out. She seemed to be seeing okay and there was no major concerns. She was new at walking by that point and starting to talk again. He asked me the biggest question: "Has she been sick since we were last there?" I told him that she had and he asked if I noticed anything. And I hadn't. He told me that was the best news because it's not a recurring problem.

But once again he wanted us to come back to see how she was progressing. So over the next year we continued to go back every four months or so to check in on her. Each time we had less to talk about and it sounded like she was more and more like a kid typical for her age.

Then finally at the beginning of this month, we went back once again. On the car ride to Children's Mercy, Rob and I were discussing how nice it would be to be done. I told him that I couldn't imagine how many more times we would need to go. I worried slightly about telling him about the eye problem the school nurse found, but we were always trying to open about what was going on with her. We told him and he told us he just wanted to know what her optometrist said and that was it. He then asked us if we wanted to leave any follow-up open-ended, to make an appointment if we had concerns. If we have/had no concerns then neither does he.We were done.

We walked out of Children's Mercy happy. We were excited to be done. We have always celebrated each thing we have dropped along the way, excited to have no less thing that we've had to dealing with regarding her regression. We celebrated when we were done with her braces and done with Infant Toddler Services. We celebrated each step and word. And now we celebrate being done with the neurologist.


Check Out the Full Story::
The One with the 42 Month Old Who Is Thriving
The One with the 38 Month Old Who Is In Speech Therapy
The One with the Preschool Evaluation: Part II
The One with the 25 Month Old Who Is Done with Infant Toddler Services
The One with the Preschool Evaluation: Part I
The One with the 34 Month Old Who Doesn't Wear Ankle Braces Anymore
The One with the 31 Month Old Who Has Something To Say
The One with the 29 Month Old Who Isn't Talking
The One with the 26 Month Who Who...
The One with the Girl Who Turns Two in a Day
The One with the 23 Month Old Who Wears Ankle Braces
The One with the 21 Month Old Who Did This
The One with the 21 Month Old Who Is Trying to Walk and Talk and Going to Get Help
The One with the 20 Month Old Who Still Isn't Walking
The One with the 18 Month Old Who Can't Walk

xo, B

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